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Add a reviewCure EB Butterfly Run
Olympic Park, London
London E20 1DY, UKSun 30th September 2018
Organiser's Description
Cure EB funds medical research to find a cure for epidermolysis bullosa - EB - a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' their skin said to be as 'fragile as a butterfly's wings'.
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