"I Love Lucy" RTS Fun Run
Sunday, September 17, 2023
Past event
10:00 AM EDT
Westbrook, Maine
Free–$32.80 · 3 races
5km, 10km, Sprint
Event summary
Join the excitement on Sunday, September 17, 2023, for the "I Love Lucy" RTS Fun Run, taking place in the lovely Westbrook, Cumberland. This vibrant event is dedicated to raising awareness for the Rothmund-Thomson Syndrome Foundation and will feature a virtual 5K run that encourages participants to move their bodies while having fun! As we celebrate this third annual event, we honor Lucy, who turns five this July, and her inspiring spirit that brings friends, family, and neighbors together to support a cause so close to their hearts.
The Rothmund-Thomson Syndrome (RTS) affects individuals of all backgrounds and can manifest early in life with various symptoms, including a unique skin rash and other health challenges. By participating in the fun run and contributing to the cause, you will help promote RTS awareness, support groundbreaking research, and keep the patient registry thriving. Your involvement is crucial in ensuring that the mission of the Rothmund-Thomson Syndrome Foundation continues to flourish, especially in the face of funding challenges. Come run, walk, or cheer on the participants, and make a difference in the lives of those affected by RTS!
The Rothmund-Thomson Syndrome (RTS) affects individuals of all backgrounds and can manifest early in life with various symptoms, including a unique skin rash and other health challenges. By participating in the fun run and contributing to the cause, you will help promote RTS awareness, support groundbreaking research, and keep the patient registry thriving. Your involvement is crucial in ensuring that the mission of the Rothmund-Thomson Syndrome Foundation continues to flourish, especially in the face of funding challenges. Come run, walk, or cheer on the participants, and make a difference in the lives of those affected by RTS!
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Races
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5k
VirtualIncl. $2.80 Fee & T-Shirt
Entries closed$32.80
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Kid Sprint
VirtualFree Cape
Entries closedFree
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10k
VirtualIncl. $2.80 Fee & T-Shirt
Entries closed$32.80
Organiser's description
PLEASE JOIN US IN PARTICIPATING IN THE ROTHMUND-THOMSON SYNDROME FOUNDATION VIRTUAL 5K ON SEPTEMBER 17, 2023!
This is the 3rd annual "I love Lucy" RTS Fun Run, it has had a few names but that idea and goal has been the same. Spread awareness about the Rothmund-Thomson Syndrome Foundation, collect as many donations as possible, move our bodies and have fun! Lucy will be 5 in July and she absolutely looks forward to race day, to seeing all her friends, family and neighbors supporting the foundation that is so near and dear to our hearts.
Rothmund-Thomson Syndrome (RTS) is a rare genetic disorder that can affect people of all races and nationalities. Symptoms often first appear during infancy, usually between three and six months of age, in the form of a skin rash on the cheeks. Patients can have just a few or several features of the syndrome.
The Mission of the Rothmund-Thomson Syndrome Foundation is to foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes
The Rothmund-Thomson Syndrome Foundation is a 501(c)(3) nonprofit organization. It was incorporated in November, 2009 by the Kimmel Family after the loss of their daughter Victoria who had RTS. Currently, we operate with six volunteer board members who raise money to support the Foundation's goals.
RTS is characterized by the following clinical features:
A unique skin rash, that begins in infancy usually on the cheeks, and spreads to the arms and legs and persists for life. This rash is called poikiloderma, and consists of areas of increased and decreased pigmentation, prominent blood vessels, and thinning of the skin.
Sparse/absent scalp hair, eyebrows, and/or eyelashes
Small stature
Diarrhea and/or vomiting in early childhood
Bone deformities
Dental and nail abnormalities
Juvenile cataracts
Cancer: skin (usually basal cell or squamous cell carcinomas) or bone (osteosarcoma)
BY JOINING US AND COLLECTING DONATION YOU WILL HELP US CONTINUE TO PROMOTE RTS AWARENESS TO THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND INDIVIDUALS AFFECTED WITH RTS AND THEIR FAMILY MEMBERS. YOUR DONATIONS AND PARTICIPATION WILL ALSO ENABLE US TO SPONSOR ANNUAL CONFERENCES AND REGIONAL SEMINARS, KEEP THE PATIENT REGISTRY GOING AND EXPAND RESEARCH ACTIVITIES WORLDWIDE.
Funding for extremely rare genetic conditions is incredibly hard to come by, organizations of all sizes have had their funding impacted by COVID-19, the harsh reality of the situation is that the larger organizations are seeking out the smaller funding this year more than they have in years past making it harder and harder for our leading researcher to secure the funding needed to keep her research alive. Please consider sharing and purchasing!
This is the 3rd annual "I love Lucy" RTS Fun Run, it has had a few names but that idea and goal has been the same. Spread awareness about the Rothmund-Thomson Syndrome Foundation, collect as many donations as possible, move our bodies and have fun! Lucy will be 5 in July and she absolutely looks forward to race day, to seeing all her friends, family and neighbors supporting the foundation that is so near and dear to our hearts.
Rothmund-Thomson Syndrome (RTS) is a rare genetic disorder that can affect people of all races and nationalities. Symptoms often first appear during infancy, usually between three and six months of age, in the form of a skin rash on the cheeks. Patients can have just a few or several features of the syndrome.
The Mission of the Rothmund-Thomson Syndrome Foundation is to foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes
The Rothmund-Thomson Syndrome Foundation is a 501(c)(3) nonprofit organization. It was incorporated in November, 2009 by the Kimmel Family after the loss of their daughter Victoria who had RTS. Currently, we operate with six volunteer board members who raise money to support the Foundation's goals.
RTS is characterized by the following clinical features:
A unique skin rash, that begins in infancy usually on the cheeks, and spreads to the arms and legs and persists for life. This rash is called poikiloderma, and consists of areas of increased and decreased pigmentation, prominent blood vessels, and thinning of the skin.
Sparse/absent scalp hair, eyebrows, and/or eyelashes
Small stature
Diarrhea and/or vomiting in early childhood
Bone deformities
Dental and nail abnormalities
Juvenile cataracts
Cancer: skin (usually basal cell or squamous cell carcinomas) or bone (osteosarcoma)
BY JOINING US AND COLLECTING DONATION YOU WILL HELP US CONTINUE TO PROMOTE RTS AWARENESS TO THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND INDIVIDUALS AFFECTED WITH RTS AND THEIR FAMILY MEMBERS. YOUR DONATIONS AND PARTICIPATION WILL ALSO ENABLE US TO SPONSOR ANNUAL CONFERENCES AND REGIONAL SEMINARS, KEEP THE PATIENT REGISTRY GOING AND EXPAND RESEARCH ACTIVITIES WORLDWIDE.
Funding for extremely rare genetic conditions is incredibly hard to come by, organizations of all sizes have had their funding impacted by COVID-19, the harsh reality of the situation is that the larger organizations are seeking out the smaller funding this year more than they have in years past making it harder and harder for our leading researcher to secure the funding needed to keep her research alive. Please consider sharing and purchasing!
Location
Virtual, Westbrook, 04092, ME, United States
"I Love Lucy" RTS Fun Run
Event data
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