Run Rare 5k
- Date Sat 27th February 2027 - Sun 28th February 2027
- Time 10:00AM CST
- Location Jacksonville, Arkansas
- Price $11.60 - $16.90
- Races 2 races
- Distances 5km
Event summary
Join us for the inspiring Run Rare 5K event taking place on February 27th and 28th, 2027, in Jacksonville, Pulaski! This vibrant celebration is not just a race; it’s a powerful movement dedicated to raising awareness for rare diseases and honoring the incredible stories of rare warriors, especially young individuals like Taylor, who has bravely faced her own challenges.
With check-in starting at 9:30 AM and the race kicking off at 10:00 AM, participants of all ages, abilities, and backgrounds are invited to walk, run, or roll in solidarity with the rare disease community. Whether you're joining in person or participating virtually, your involvement will help highlight the importance of understanding and supporting those affected by rare conditions. Together, we can amplify the message that being different is not just okay, but something to be celebrated! Don’t miss this opportunity to make a difference and be part of a movement that champions equity, inclusion, and awareness for the 300 million individuals worldwide living with rare diseases. Lace up your shoes and let’s make some noise for those whose stories deserve to be heard!
With check-in starting at 9:30 AM and the race kicking off at 10:00 AM, participants of all ages, abilities, and backgrounds are invited to walk, run, or roll in solidarity with the rare disease community. Whether you're joining in person or participating virtually, your involvement will help highlight the importance of understanding and supporting those affected by rare conditions. Together, we can amplify the message that being different is not just okay, but something to be celebrated! Don’t miss this opportunity to make a difference and be part of a movement that champions equity, inclusion, and awareness for the 300 million individuals worldwide living with rare diseases. Lace up your shoes and let’s make some noise for those whose stories deserve to be heard!
Organiser's Description
CHECK-IN STARTS AT 9:30
RACE STARTS AT 10:00AM
RUN RARE: The Rarety 5K is more than just a race... Its a movement. A celebration. A call to action. Its a heartfelt and high-energy event powered by Rarety, a nonprofit organization founded by Taylor, a Class of 2026 student who has been bravely battling a rare disease for years. She leaves the National Institute of Health on Friday, 03/13/26, where they studied her body from head to toe for a week, hopefully to find a cure.
This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylors story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and never to let a diagnosis define your destiny.
RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether youre lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:
Being different is powerful!!!! And every rare story deserves to be seen, heard, and celebrated!!!
Our Mission
The purpose of RUN RARE is to:
Raise awareness for rare diseases, many of which are unknown, underfunded, or misunderstood.
Shine a light on the stories of rare warriors, reminding them and the world that they are not invisible.
Provide a space of unity, inspiration, and strength for families, caregivers, and advocates.
Support the ongoing programs of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.
Why It Matters
There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.
RUN RARE is about changing that!!
When you join this 5K, you are not just registering for a race... youre joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. Youre helping us say loudly and clearly: Its OK to be different. And being rare is something to be proud of!!
RACE STARTS AT 10:00AM
RUN RARE: The Rarety 5K is more than just a race... Its a movement. A celebration. A call to action. Its a heartfelt and high-energy event powered by Rarety, a nonprofit organization founded by Taylor, a Class of 2026 student who has been bravely battling a rare disease for years. She leaves the National Institute of Health on Friday, 03/13/26, where they studied her body from head to toe for a week, hopefully to find a cure.
This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylors story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and never to let a diagnosis define your destiny.
RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether youre lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:
Being different is powerful!!!! And every rare story deserves to be seen, heard, and celebrated!!!
Our Mission
The purpose of RUN RARE is to:
Raise awareness for rare diseases, many of which are unknown, underfunded, or misunderstood.
Shine a light on the stories of rare warriors, reminding them and the world that they are not invisible.
Provide a space of unity, inspiration, and strength for families, caregivers, and advocates.
Support the ongoing programs of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.
Why It Matters
There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.
RUN RARE is about changing that!!
When you join this 5K, you are not just registering for a race... youre joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. Youre helping us say loudly and clearly: Its OK to be different. And being rare is something to be proud of!!
Races
-
Run Rare:Virtual Rarety 5K
Incl. $1.60 Fee & T-Shirt
$11.60
OPENS 01 OCT -
Run Rare 5k
Incl. $1.90 Fee & T-Shirt
Sun 28th February 2027 (10:00AM CST)
$16.90
OPENS 01 OCTRegistration after 03/06/2027 wont include a shirt but one can be purchased and mailed to you
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1 Paradise Park Rd, Jacksonville, 72076, AR, United States
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