Run Rare 5k
- Date Wed 6th August 2025 - Sat 28th February 2026
- Location Jacksonville, Arkansas
- Price $38.10
- Races 1 race
- Distances 5km
Event summary
Join the movement at the Run Rare 5K, taking place in Jacksonville, Pulaski, from August 6, 2025, to February 28, 2026! This inspiring event is more than just a race; it’s a heartfelt celebration dedicated to raising awareness for rare diseases and honoring the courageous stories of rare warriors like Taylor, a Class of 2026 student. Participants of all ages and abilities are invited to walk, run, or roll in solidarity, creating a vibrant atmosphere filled with hope and determination.
By participating in the Run Rare 5K, you’re stepping up to amplify the voices of those affected by over 7,000 rare diseases that impact millions worldwide. Whether you’re running in memory of a loved one, supporting a warrior in your life, or participating virtually from anywhere, your involvement helps shine a light on the often-overlooked narratives of strength and resilience. Together, we can celebrate the power of being different and ensure that every rare story is seen, heard, and cherished. Don’t miss the chance to be part of this empowering event—let’s make a difference together!
By participating in the Run Rare 5K, you’re stepping up to amplify the voices of those affected by over 7,000 rare diseases that impact millions worldwide. Whether you’re running in memory of a loved one, supporting a warrior in your life, or participating virtually from anywhere, your involvement helps shine a light on the often-overlooked narratives of strength and resilience. Together, we can celebrate the power of being different and ensure that every rare story is seen, heard, and cherished. Don’t miss the chance to be part of this empowering event—let’s make a difference together!
Organiser's Description
RUN RARE: The Rarety 5K is more than just a race... its a movement. A celebration. A call to action. Its a heartfelt and high-energy event powered by Rarety, a nonprofit organization founded by Taylor, a Class of 2026 student who has been bravely battling a rare disease for years.
This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylors story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and to never let a diagnosis define your destiny.
RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether youre lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:
Being different is powerful!!!! And every rare story deserves to be seen, heard, and celebrated!!!
Our Mission
The purpose of RUN RARE is to:
Raise awareness for rare diseases, many of which are unknown, underfunded, or misunderstood.
Shine a light on the stories of rare warriors, reminding them and the world that they are not invisible.
Provide a space of unity, inspiration, and strength for families, caregivers, and advocates.
Support the ongoing programs of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.
Why It Matters
There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.
RUN RARE is about changing that!!
When you join this 5K, you are not just registering for a race... youre joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. Youre helping us say loudly and clearly: Its OK to be different. And being rare is something to be proud of!!
This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylors story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and to never let a diagnosis define your destiny.
RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether youre lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:
Being different is powerful!!!! And every rare story deserves to be seen, heard, and celebrated!!!
Our Mission
The purpose of RUN RARE is to:
Raise awareness for rare diseases, many of which are unknown, underfunded, or misunderstood.
Shine a light on the stories of rare warriors, reminding them and the world that they are not invisible.
Provide a space of unity, inspiration, and strength for families, caregivers, and advocates.
Support the ongoing programs of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.
Why It Matters
There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.
RUN RARE is about changing that!!
When you join this 5K, you are not just registering for a race... youre joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. Youre helping us say loudly and clearly: Its OK to be different. And being rare is something to be proud of!!
Reviews
Done this event?
First-hand event reviews from people who have been there, done that and got the breathable T-shirt, really help everyone choose their next event.
Add a reviewRun Rare 5k
