Run Rare 5k

  • Date Sat 13th March 2027 - Sun 14th March 2027
  • Time 10:00AM CST
  • Location Jacksonville, Arkansas
  • Price $11.60 - $16.90
  • Races 2 races
  • Distances 5km

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Event summary

Join us for the exhilarating Run Rare 5K, taking place on Saturday, March 13th, 2027, in the vibrant city of Jacksonville, Pulaski! This inspiring event kicks off with check-in starting at 9:30 AM and the race beginning at 10:00 AM. The Run Rare 5K is not just another race; it’s a heartfelt celebration and a call to action dedicated to raising awareness for rare diseases. This year’s event honors the courageous journey of Taylor, a Class of 2026 student who has bravely faced a rare disease for years.

Participants of all ages and abilities are invited to walk, run, or roll in solidarity with the rare disease community. Whether you’re racing in memory of a loved one or supporting a rare warrior, every step taken amplifies the message that being different is powerful! With over 7,000 rare diseases affecting millions globally, this event seeks to bring attention to their often-overlooked stories. By joining the Run Rare 5K, you’re not just registering for a race; you’re becoming part of a movement that celebrates uniqueness and advocates for equity and inclusion. Let’s come together to show that every rare story deserves to be seen, heard

Organiser's Description

CHECK-IN STARTS AT 9:30

RACE STARTS AT 10:00AM

RUN RARE: The Rarety 5K is more than just a race... Its a movement. A celebration. A call to action. Its a heartfelt and high-energy event powered by Rarety, a nonprofit organization founded by Taylor, a Class of 2026 student who has been bravely battling a rare disease for years. She leaves the National Institute of Health on Friday, 03/13/26, where they studied her body from head to toe for a week, hopefully to find a cure.

This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylors story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and never to let a diagnosis define your destiny.

RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether youre lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:

Being different is powerful!!!! And every rare story deserves to be seen, heard, and celebrated!!!








Our Mission
The purpose of RUN RARE is to:

Raise awareness for rare diseases, many of which are unknown, underfunded, or misunderstood.
Shine a light on the stories of rare warriors, reminding them and the world that they are not invisible.
Provide a space of unity, inspiration, and strength for families, caregivers, and advocates.
Support the ongoing programs of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.


Why It Matters


There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.



RUN RARE is about changing that!!

When you join this 5K, you are not just registering for a race... youre joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. Youre helping us say loudly and clearly: Its OK to be different. And being rare is something to be proud of!!

Races

  • Run Rare:Virtual Rarety 5K

    Incl. $1.60 Fee & T-Shirt

    $11.60

  • Run Rare 5k

    Incl. $1.90 Fee & T-Shirt

    Sat 13th March 2027 (10:00AM CST)

    $16.90

    Registration after 03/06/2027 wont include a shirt but one can be purchased and mailed to you

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Location

1 Paradise Park Rd, Jacksonville, 72076, AR, United States

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Mar 13, 2027

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