Let Leona Roar
Sunday, February 2, 2025
Past event
7:30 AM EST
Miramar, Florida
$43.40 · 1 race
5km
Event summary
Join us for the inspiring virtual event "Let Leona Roar" on Sunday, February 2, 2025, as we come together to raise awareness for rare diseases and support individuals and families affected by these conditions. Taking place in Miramar, Broward, this special event is part of Rare Disease/Disorder Day, an observance dedicated to improving access to treatment and medical representation for those with rare disorders.
Participants can take part in a virtual 5k, making this event accessible to everyone, no matter where they are! This initiative honors the journey of Leona, who was diagnosed with a rare genetic disorder before birth and has grown into a remarkable 5-year-old. By joining "Let Leona Roar," you will not only help spread awareness but also contribute to crucial initiatives that foster inclusion and support through donations to the National Organization for Rare Disorders (NORD). Be a part of this powerful movement and help us create a community that embraces and uplifts those impacted by rare diseases!
Participants can take part in a virtual 5k, making this event accessible to everyone, no matter where they are! This initiative honors the journey of Leona, who was diagnosed with a rare genetic disorder before birth and has grown into a remarkable 5-year-old. By joining "Let Leona Roar," you will not only help spread awareness but also contribute to crucial initiatives that foster inclusion and support through donations to the National Organization for Rare Disorders (NORD). Be a part of this powerful movement and help us create a community that embraces and uplifts those impacted by rare diseases!
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Races
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2nd Annual 5k
Incl. $3.40 Fee
Entries closed7:30 AM EST
$43.40
Organiser's description
Rare Disease/ Disorder Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Leona was diagnosed with a Rare Genetic Disorder before birth "15q26.3 deletion", with limited information and a projected timeline. She has grown and developed into a strong 5-year-old today, as part of her village I had always envisioned a program to enhance public knowledge and allow a platform for questions and information.
This virtual 5k is only the beginning of "Let Leona Roar Incorporated", we are hoping with your support you will learn and embrace a community for inclusion. Proceeds will support our Initiatives and Donations made towards NORD National Organization for Rare Disorders.
This virtual 5k is only the beginning of "Let Leona Roar Incorporated", we are hoping with your support you will learn and embrace a community for inclusion. Proceeds will support our Initiatives and Donations made towards NORD National Organization for Rare Disorders.
Location
16801 Miramar Parkway, Miramar, 33027, FL, United States
Let Leona Roar
Event data
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