Let Leona Roar
Thursday, February 1 – Thursday, February 29, 2024
Past event
8:00 AM EST
Fort Lauderdale, Florida
$38.10 · 1 race
5km
Event summary
Join us for the inspiring "Let Leona Roar" virtual 5k event, taking place throughout February 2024 from the vibrant city of Fort Lauderdale, Broward. Kicking off on February 1st and running until February 29th, this event coincides with Rare Disease Day, highlighting the importance of raising awareness for rare diseases and improving access to treatment for affected individuals and their families.
This uplifting initiative was born from the journey of a remarkable 5-year-old named Leona, who was diagnosed with a rare genetic disorder before birth. "Let Leona Roar" aims to create a supportive community, enhance public knowledge, and provide a platform for questions and information about rare diseases. By participating in this virtual 5k, you'll not only embrace a spirit of inclusion but also contribute to meaningful initiatives that support the National Organization for Rare Disorders (NORD). Join us in celebrating resilience and making a difference—together, we can help Leona and others like her roar!
This uplifting initiative was born from the journey of a remarkable 5-year-old named Leona, who was diagnosed with a rare genetic disorder before birth. "Let Leona Roar" aims to create a supportive community, enhance public knowledge, and provide a platform for questions and information about rare diseases. By participating in this virtual 5k, you'll not only embrace a spirit of inclusion but also contribute to meaningful initiatives that support the National Organization for Rare Disorders (NORD). Join us in celebrating resilience and making a difference—together, we can help Leona and others like her roar!
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Races
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Let Leona Roar Live
VirtualIncl. $3.10 Fee & Participation Medal
Entries closedThursday, Feb 1, 2024
$38.10
Organiser's description
Rare Disease/ Disorder Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Leona was diagnosed with a Rare Genetic Disorder before birth "15q26.3 deletion", with limited information and a projected timeline. She has grown and developed into a strong 5-year-old today, as part of her village I had always envisioned a program to enhance public knowledge and allow a platform for questions and information.
This virtual 5k is only the beginning of "Let Leona Roar Incorporated", we are hoping with your support you will learn and embrace a community for inclusion. Proceeds will support our Initiatives and Donations made towards NORD National Organization for Rare Disorders.
This virtual 5k is only the beginning of "Let Leona Roar Incorporated", we are hoping with your support you will learn and embrace a community for inclusion. Proceeds will support our Initiatives and Donations made towards NORD National Organization for Rare Disorders.
Location
Broward, Fort Lauderdale, 33322, FL, United States
Let Leona Roar
Event data
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