TSF 5K for Rare Neuroimmune Disorders
- Date Sun 28th September 2025
- Time 9:00AM EDT
- Location Weston, Massachusetts
- Price $29.75
- Races 1 race
- Distances 5km
Event summary
Join us for the TSF 5K for Rare Neuroimmune Disorders on Sunday, September 28, 2025, in Weston, Middlesex! This uplifting event aims to raise awareness and funds for rare neuroimmune disorders, particularly neuromyelitis optica (NMO), a condition that can lead to devastating effects such as vision loss and paralysis. By participating in this 5K, you will not only challenge yourself physically but also contribute to vital research efforts supported by The Sumaira Foundation (TSF), which has funded over $1 million in research since its inception.
The TSF 5K is more than just a race; it's a celebration of community and hope for those affected by these rare disorders. With a mission to enhance the quality of life for patients through early detection and research funding, TSF is proud to be a patient-led organization with ambassadors from 35 countries. Lace up your running shoes and join us in making a difference—together, we can help spark new discoveries and support the fight against rare neuroimmune disorders!
The TSF 5K is more than just a race; it's a celebration of community and hope for those affected by these rare disorders. With a mission to enhance the quality of life for patients through early detection and research funding, TSF is proud to be a patient-led organization with ambassadors from 35 countries. Lace up your running shoes and join us in making a difference—together, we can help spark new discoveries and support the fight against rare neuroimmune disorders!
Organiser's Description
After suddenly losing vision and feeling in her body, Sumaira was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease that affects the central nervous system resulting in vision loss and paralysis. Two months after her diagnosis, she started The Sumaira Foundation (TSF), a now global nonprofit organization dedicated to raising awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. TSF is proud to be patient-led, patient-powered, science-driven and therapy-agnostic. The organization is proud to call 102 patients, caregivers and clinicians TSF Ambassadors representing 35 countries.
A Personal Message from Teresa Clark (TSF Ambassador):
"As many of you may know, almost three years ago, in May 2022, I was diagnosed with a rare autoimmune disease called NMO - Neuromyelitis Optica.
This 5k has been something I've wanted to do for years now, so I'm excited to finally begin this annual race to raise awareness.
Early detection of NMO improves quality of life!" Read more on Terry's Story Here: https://www.sumairafoundation.org/terrys-nmo-story-the-perfect-storm/
Since 2018, TSF has funded $1m in rare neuroimmune disorder research, fellowship and journal publications as a result of grassroot fundraising. The aim of the 5K is to raise enough funds to support 2 additional research projects in 2025 through the Foundations SPARK and Unicorn grants. Explore TSF's research portfolio: HTTPS://WWW.SUMAIRAFOUNDATION.ORG/TSF-FUNDED-RESEARCH/
A Personal Message from Teresa Clark (TSF Ambassador):
"As many of you may know, almost three years ago, in May 2022, I was diagnosed with a rare autoimmune disease called NMO - Neuromyelitis Optica.
This 5k has been something I've wanted to do for years now, so I'm excited to finally begin this annual race to raise awareness.
Early detection of NMO improves quality of life!" Read more on Terry's Story Here: https://www.sumairafoundation.org/terrys-nmo-story-the-perfect-storm/
Since 2018, TSF has funded $1m in rare neuroimmune disorder research, fellowship and journal publications as a result of grassroot fundraising. The aim of the 5K is to raise enough funds to support 2 additional research projects in 2025 through the Foundations SPARK and Unicorn grants. Explore TSF's research portfolio: HTTPS://WWW.SUMAIRAFOUNDATION.ORG/TSF-FUNDED-RESEARCH/
TSF 5K for Rare Neuroimmune Disorders
