TSF 5K for Rare Neuroimmune Disorders

  • Date Sun 13th September 2026
  • Time 9:00AM EDT
  • Location Weston, Massachusetts
  • Price $29.75
  • Races 1 race
  • Distances 5km

Event summary

Join us for the TSF 5K for Rare Neuroimmune Disorders on Sunday, September 13th, 2026, in the vibrant town of Weston, Middlesex. This exciting event not only encourages fitness and community spirit but also plays a crucial role in raising awareness for rare neuroimmune disorders, particularly neuromyelitis optica (NMO). Participants will have the opportunity to run or walk 5 kilometers, all while supporting vital research initiatives aimed at improving the lives of those affected by these challenging conditions.

Founded by Sumaira, a passionate advocate following her own NMO diagnosis, The Sumaira Foundation (TSF) has made significant strides since its inception, funding over $1 million in research since 2018. As a patient-led organization, TSF is dedicated to building a supportive community and advocating for those with rare neuroimmune disorders. By participating in this uplifting event, you will help fund future research projects that could transform the lives of countless individuals. Come out, get active, and make a difference in the fight against NMO!

Organiser's Description

After suddenly losing vision and feeling in her body, Sumaira was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease that affects the central nervous system resulting in vision loss and paralysis. Two months after her diagnosis, she started The Sumaira Foundation (TSF), a now global nonprofit organization dedicated to raising awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. TSF is proud to be patient-led, patient-powered, science-driven and therapy-agnostic. The organization is proud to call 102 patients, caregivers and clinicians TSF Ambassadors representing 35 countries.

A Personal Message from Teresa Clark (TSF Ambassador):

"As many of you may know, almost three years ago, in May 2022, I was diagnosed with a rare autoimmune disease called NMO - Neuromyelitis Optica.

This 5k has been something I've wanted to do for years now, so I'm excited to finally begin this annual race to raise awareness.

Early detection of NMO improves quality of life!" Read more on Terry's Story Here: https://www.sumairafoundation.org/terrys-nmo-story-the-perfect-storm/

Since 2018, TSF has funded $1m in rare neuroimmune disorder research, fellowship and journal publications as a result of grassroot fundraising. The aim of the 5K is to raise enough funds to support 2 additional research projects in 2025 through the Foundations SPARK and Unicorn grants. Explore TSF's research portfolio: HTTPS://WWW.SUMAIRAFOUNDATION.ORG/TSF-FUNDED-RESEARCH/

Races

  • 5K Run

    Incl. $4.75 Fee & T-Shirt

    Sun 13th September 2026 (9:00AM EDT)

    $29.75

    OPENS 01 JUN

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Location

11 Town House Rd, Weston, 02493, MA, United States

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