Get ready to make a difference during the Dash4DESSH 2025, taking place from Saturday, October 11 to Sunday, October 19, 2025, in the beautiful town of Vernon, Sussex! This exciting event is all about raising awareness and crucial funds for those affected by Desanto-Shinawi Syndrome. Participants can choose their own adventure, whether it’s running, walking, or even strolling in their neighborhood. Set your distance goal at 1 mile, 3.1 miles (5k), or simply enjoy a leisurely outing.

Join a community of supporters around the globe and meet up at local parks, beach spots, or even your street corner to show your solidarity. This athletic-optional dash encourages fun and connection, and participants are urged to wear the signature #DASH4DESSH 2025 t-shirt available at the DESSH Shop, or download a free paper bib to personalize your experience. With 100% of registration fees and donations going directly to vital DESSH programs, education, and research, your participation will contribute to making a real impact. Let’s unite for a common cause and show our support for those in need during this inspiring week-long event!