Move to Cure STXBP1 Disorders 2025
- Date Mon 1st September 2025 - Tue 2nd December 2025
- Location Virtual Event
- Price $27.50
- Races 1 race
Event summary
Get ready to make a difference at the Move to Cure STXBP1 Disorders event, taking place from September 1 to December 2, 2025! This exciting annual movement aims to raise awareness and critical funds for STXBP1 Disorders, all while uniting families and communities with love and purpose. Participants can walk, run, hike, or ride, embracing the theme "Trailblazing Together" to honor those affected by STXBP1.
This September, as we observe STXBP1 Awareness Month, your involvement is crucial in reaching our bold goal of raising $100,000 to support families and advance research. Whether you join a team, host your own event, or simply support from afar, every step you take contributes to a brighter future. Together, we can push the boundaries of science and create hope for countless families. Don’t miss this opportunity to be part of something impactful and transformative!
This September, as we observe STXBP1 Awareness Month, your involvement is crucial in reaching our bold goal of raising $100,000 to support families and advance research. Whether you join a team, host your own event, or simply support from afar, every step you take contributes to a brighter future. Together, we can push the boundaries of science and create hope for countless families. Don’t miss this opportunity to be part of something impactful and transformative!
Organiser's Description
TRAILBLAZING TOGETHER WITH LOVE AND PURPOSE
During September Awareness Month and beyond, we Move to Cure with purpose and love.
Every move we make holds the hope we share along with the urgency to keep pushing science forward. We move for every child and family affected by STXBP1, their stories are forever part of our journey.
Whether you join a team, host an event, or support from afar, your participation in Move to Cure matters.
This year, we have a bold and urgent goal: to raise $100,000. This is more than a fundraiser. Its a promise. That we will never stop accelerating knowledge and supporting our families, and that we will always remember our reasons why.
WHAT - The STXBP1 Foundation is a 501c3 nonprofit dedicated to supporting families and advancing research for STXBP1 Disorders. We work to raise awareness, share trusted resources, and move progress forwardtogether.
Move to Cure is our annual movement to raise awareness of STXBP1 and raise critical funds that support our community and advance science for STXBP1 Disorders.
Families gather to walk, run, hike, or ride to support each other and the community. This years theme is Trailblazing Together, because no one is on this journey alone.
WHEN - From September STXBP1 Awareness Monththrough Giving Tuesday, December 2our community moves as one. Not just to raise funds, but to honor, to remember, and to carry forward our mission.
HOW - Start or Join a Move to Cure Team
Visit the Move to Cure event page
Click the maroon Register Join a Team button above
Follow the prompts:
Create or log into your RunSignUp account
Add your name
Agree to the waiver
Choose to join a team (or start your own!)
Thats it! You're in. Visit your team page to check if your event is in-person or virtualand start planning your fundraiser.
2025 MOVE TO CURE SHIRTS AND SOCKS
SHIRTS: Weve refreshed this years design, and shirts are shipped directly to your door!
Starting a team? Create a custom team shirt HERE, and add the link to your team page.
Joining a team? Check your team page for the shirt link and rep your crew with pride.
SOCKS: STXBP1 socks are back for a limited time! Add them for purchase when you register.
REGISTERING VS. DONATING WHATS THE DIFFERENCE?
Registering: You're signing up to participate (walk, run, ride, or rally!)
Your registration supports your teams fundraising goal
Youll appear as a team member
If its an in-person event, it helps your captain plan for gear and giveaways
Donating: Youre supporting charitably, but not joining a specific team
You wont be listed as a team member
No participation neededjust your generous support!
During September Awareness Month and beyond, we Move to Cure with purpose and love.
Every move we make holds the hope we share along with the urgency to keep pushing science forward. We move for every child and family affected by STXBP1, their stories are forever part of our journey.
Whether you join a team, host an event, or support from afar, your participation in Move to Cure matters.
This year, we have a bold and urgent goal: to raise $100,000. This is more than a fundraiser. Its a promise. That we will never stop accelerating knowledge and supporting our families, and that we will always remember our reasons why.
WHAT - The STXBP1 Foundation is a 501c3 nonprofit dedicated to supporting families and advancing research for STXBP1 Disorders. We work to raise awareness, share trusted resources, and move progress forwardtogether.
Move to Cure is our annual movement to raise awareness of STXBP1 and raise critical funds that support our community and advance science for STXBP1 Disorders.
Families gather to walk, run, hike, or ride to support each other and the community. This years theme is Trailblazing Together, because no one is on this journey alone.
WHEN - From September STXBP1 Awareness Monththrough Giving Tuesday, December 2our community moves as one. Not just to raise funds, but to honor, to remember, and to carry forward our mission.
HOW - Start or Join a Move to Cure Team
Visit the Move to Cure event page
Click the maroon Register Join a Team button above
Follow the prompts:
Create or log into your RunSignUp account
Add your name
Agree to the waiver
Choose to join a team (or start your own!)
Thats it! You're in. Visit your team page to check if your event is in-person or virtualand start planning your fundraiser.
2025 MOVE TO CURE SHIRTS AND SOCKS
SHIRTS: Weve refreshed this years design, and shirts are shipped directly to your door!
Starting a team? Create a custom team shirt HERE, and add the link to your team page.
Joining a team? Check your team page for the shirt link and rep your crew with pride.
SOCKS: STXBP1 socks are back for a limited time! Add them for purchase when you register.
REGISTERING VS. DONATING WHATS THE DIFFERENCE?
Registering: You're signing up to participate (walk, run, ride, or rally!)
Your registration supports your teams fundraising goal
Youll appear as a team member
If its an in-person event, it helps your captain plan for gear and giveaways
Donating: Youre supporting charitably, but not joining a specific team
You wont be listed as a team member
No participation neededjust your generous support!
Races
-
Move to Cure STXBP1 Disorders
Incl. $2.50 Fee
$27.50
Each team will hold their own Move to Cure Event whether it be in-person or virtually. The goal is to spread awareness for STXBP1 Disorders by just getting out and getting moving, to raise funds to accelerate research for a cure!
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Move to Cure STXBP1 Disorders 2025
