Move to Cure STXBP1 Disorders 2025
- Date Mon 1st September 2025 - Tue 2nd December 2025
- Location Virtual Event
- Price $27.50
- Races 1 race
Event summary
Join the global movement to combat STXBP1 Disorders at the "Move to Cure STXBP1 Disorders" event, running from September 1 to December 2, 2025! This exciting initiative invites families and friends from around the world to walk, run, hike, or bike in their own neighborhoods, all while raising awareness and funds for crucial research. With a bold goal of raising $100,000, participants can create or join teams, each with their own event page, to track their progress and share their experiences.
This event kicks off in September, coinciding with STXBP1 Awareness Month, and culminates on Giving Tuesday, December 2. Whether you choose to partake in in-person activities or opt for virtual participation, every step you take helps support families affected by this rare developmental and epilepsy disorder. Don’t miss the chance to don new team shirts and fun STXBP1 socks while showing your commitment to finding a cure! Together, let’s trailblaze for hope and healing, making a lasting impact for those living with STXBP1 disorders. Sign up today and be part of this inspiring journey!
This event kicks off in September, coinciding with STXBP1 Awareness Month, and culminates on Giving Tuesday, December 2. Whether you choose to partake in in-person activities or opt for virtual participation, every step you take helps support families affected by this rare developmental and epilepsy disorder. Don’t miss the chance to don new team shirts and fun STXBP1 socks while showing your commitment to finding a cure! Together, let’s trailblaze for hope and healing, making a lasting impact for those living with STXBP1 disorders. Sign up today and be part of this inspiring journey!
Organiser's Description
TRAILBLAZING TOGETHER TO CURE STXBP1 DISORDERS
Be part of a global movement as the entire STXBP1 Community comes togethernear and farto Trailblaze Together for STXBP1 Disorders! Families and friends are encouraged to walk, run, hike, or bike right in their own neighborhoods and communities.
We have a bold goal this year: raise $100,000 to fund critical research. And we know our incredible trailblazing community is ready to rise to the challenge.
WHAT?
Grab your family and friends and lets get MOVING to Trailblaze Together for STXBP1 Disorders! The STXBP1 Foundation invites you to join us in raising awareness and funds in honor of our loved ones living with an STXBP1 disorder.
Create a team or join a team and Get Moving across the globe to CURE STXBP1 Disorders! Each team will have their own event pagewhether in-person or virtual. Once registered, check your teams page for specific details about your Trailblazing Together: Move to Cure STXBP1 Disorders event.
WHY?
STXBP1 Disorder is a rare developmental and epilepsy disorder caused by mutations in the STXBP1 gene, located on chromosome 9. These changes impact communication in the brain, leading to symptoms such as epilepsy, global developmental delay, cognitive impairment, autism, and movement disorders.
Your participation and donations help fund critical research to accelerate the development of therapies, treatmentsand one day, a cure.
WHO?
The STXBP1 Foundation, a 501(c)3 dedicated to raising awareness and finding a cure for STXBP1-Related Disorder. We work with families, physicians, scientists, and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents. Our nonprofit is focused on advocacy, driving research, and providing our families and their physicians with information and resources.
WHEN?
The Trailblazing Together: Move to Cure STXBP1 Disorders global event launches September 1 (STXBP1 Awareness Month) and continues through December 2 (Giving Tuesday).
If your team isnt hosting an in-person event, pick a day, put on your STX gear, and get moving for a cure! Dont forget to take photos and tag us:
Facebook: Stxbp1 Disorders
Instagram: @stxbp1_foundation
Use hashtag: #Move2CureSTXBP125
Check your team page for details on in-person or virtual events.
HOW TO JOIN A TEAM
1. Visit the STXBP1 Move to Cure Event page and click the maroon Register Join a Team button.
2. If youre new to Run Sign Up, create an account and add a registrant. If you already have a profile, select it and continue.
3. Agree to the waiver by typing your name.
4. Choose whether to join the mailing list.
5. Once registered, you can create or join a team!
After joining, visit your teams page under the Donations tab to find out whether your event is in-person or virtualand start planning your trailblazing journey!
NEW SHIRTS FOR 2025!
Weve refreshed the shirt design with a fun new look! Dont miss out on your teams custom shirtshipped directly to your home.
Starting a team? Create a team shirt HERE [https://www.bonfire.com/event/move-to-cure-25/] and add the link to your shirts to your team page.
Joining a team? Look for your teams shirt link and rep your crew with pride!
READY TO TRAILBLAZE TOGETHER?
REGISTER and/or DONATE TODAY and help us reach our goal. Together, were not just movingwere TRAILBLAZING TOWARD A CURE.
OH...ONE MORE THING...STXBP1 SOCKS ARE BACK FOR A LIMITED TIME!! ADD ON SOCKS TO YOUR REGISTRATION!
Be part of a global movement as the entire STXBP1 Community comes togethernear and farto Trailblaze Together for STXBP1 Disorders! Families and friends are encouraged to walk, run, hike, or bike right in their own neighborhoods and communities.
We have a bold goal this year: raise $100,000 to fund critical research. And we know our incredible trailblazing community is ready to rise to the challenge.
WHAT?
Grab your family and friends and lets get MOVING to Trailblaze Together for STXBP1 Disorders! The STXBP1 Foundation invites you to join us in raising awareness and funds in honor of our loved ones living with an STXBP1 disorder.
Create a team or join a team and Get Moving across the globe to CURE STXBP1 Disorders! Each team will have their own event pagewhether in-person or virtual. Once registered, check your teams page for specific details about your Trailblazing Together: Move to Cure STXBP1 Disorders event.
WHY?
STXBP1 Disorder is a rare developmental and epilepsy disorder caused by mutations in the STXBP1 gene, located on chromosome 9. These changes impact communication in the brain, leading to symptoms such as epilepsy, global developmental delay, cognitive impairment, autism, and movement disorders.
Your participation and donations help fund critical research to accelerate the development of therapies, treatmentsand one day, a cure.
WHO?
The STXBP1 Foundation, a 501(c)3 dedicated to raising awareness and finding a cure for STXBP1-Related Disorder. We work with families, physicians, scientists, and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents. Our nonprofit is focused on advocacy, driving research, and providing our families and their physicians with information and resources.
WHEN?
The Trailblazing Together: Move to Cure STXBP1 Disorders global event launches September 1 (STXBP1 Awareness Month) and continues through December 2 (Giving Tuesday).
If your team isnt hosting an in-person event, pick a day, put on your STX gear, and get moving for a cure! Dont forget to take photos and tag us:
Facebook: Stxbp1 Disorders
Instagram: @stxbp1_foundation
Use hashtag: #Move2CureSTXBP125
Check your team page for details on in-person or virtual events.
HOW TO JOIN A TEAM
1. Visit the STXBP1 Move to Cure Event page and click the maroon Register Join a Team button.
2. If youre new to Run Sign Up, create an account and add a registrant. If you already have a profile, select it and continue.
3. Agree to the waiver by typing your name.
4. Choose whether to join the mailing list.
5. Once registered, you can create or join a team!
After joining, visit your teams page under the Donations tab to find out whether your event is in-person or virtualand start planning your trailblazing journey!
NEW SHIRTS FOR 2025!
Weve refreshed the shirt design with a fun new look! Dont miss out on your teams custom shirtshipped directly to your home.
Starting a team? Create a team shirt HERE [https://www.bonfire.com/event/move-to-cure-25/] and add the link to your shirts to your team page.
Joining a team? Look for your teams shirt link and rep your crew with pride!
READY TO TRAILBLAZE TOGETHER?
REGISTER and/or DONATE TODAY and help us reach our goal. Together, were not just movingwere TRAILBLAZING TOWARD A CURE.
OH...ONE MORE THING...STXBP1 SOCKS ARE BACK FOR A LIMITED TIME!! ADD ON SOCKS TO YOUR REGISTRATION!
Races
-
Move to Cure STXBP1 Disorders
Incl. $2.50 Fee
$27.50
Each team will hold their own Move to Cure Event whether it be in-person or virtually. The goal is to spread awareness for STXBP1 Disorders by just getting out and getting moving, to raise funds to accelerate research for a cure!
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