Mullet March 5K
Venetia, Pennsylvania
Venetia, PennsylvaniaSat 13th July 2024
1 race
Organiser's Description
Mullet March 5K - "Wyatt Wild's March for a Cure"
A fun event for the entire family! In honor of Wyatt and his beloved mullet, we are asking participants to either grow a mullet, cut your hair into a mullet, style your best mullet, or wear a mullet wig. Of course, we understand that is not an option for everyone, but Wyatt would love for anyone who can to please do so!
T-shirts: Distributed on race day while supplies last. All pre-registered participants are guaranteed a T-shirt.
Wyatts Story
In 2021 on the way home from a family vacation, Wyatt began collapsing. We knew right away something wasn't right. After being brushed off by the pediatrician and ER Neurologist, we pushed for answers. They performed an emergency Brain MRI to see if his collapsing was neurological. Afterwards, they apologized repeatedly when they broke the news. They discovered Wyatt had bilateral brain lesions on his Globus Pallidus. They also found he had undetectable levels of Vitamin B1 in his body, Hypotonia, Ataxia and Peripheral Neuropathy. We left the hospital more confused than we had answers and sought a second opinion. It wasn't until the second hospital took another look at his records that we had a direction to go in. Finally, after a several yearlong medical nightmare, our son Wyatt was diagnosed with a rare life-threatening neurodegenerative metabolic mitochondrial disease, Pyruvate Dehydrogenase Complex Deficiency. This was the most devastating and heartbreaking diagnosis we never even imagined we would hear.
Hope for PDCD
As parents who love their child more than life itself, we refused to accept that there are no treatment options or a cure available. We cannot and will not stop fighting and advocating for Wyatt. On that journey is where we met Francis and Jon, two other parents who refused to give up. In honor of their daughter Violet, who has the same disease as Wyatt, and in an effort to give our kids a fighting chance they have created "Hope for PDCD", a non-profit foundation dedicated to giving children with Pyruvate Dehydrogenase Complex Deficiency (PDCD) hope for a cure. Hope for PDCD has partnered with the University of Texas Southwestern to initiate gene therapy research for the PDHA1 gene, the gene in which pathogenic mutations most commonly cause PDCD. The first stage of testing began on 11/2/2022 and is expected to take 20-24 months to complete. The hope is to progress towards an In-Human Clinal Trial.
This is where the 5k comes in! This is Wyatts best chance at fighting this disease and stopping the neurodegeneration. As I mentioned earlier, there is nothing we won't do to help Wyatt. He has come so far and fought so incredibly hard, we can't let him down. This research is very costly and we can't do it without your help. We are coming to you as friends, neighbors, family, fellow parents, and humans to please help us to help him and every one of his PDCD brothers and sisters. For more information on the foundation we are benefitting please visit www.HopeForPDCD.org or for more information on Wyatt Wilds journey please visit www.facebook.com/FightLikeWyatt or follow @cutterguywyattwild on Instagram.
A fun event for the entire family! In honor of Wyatt and his beloved mullet, we are asking participants to either grow a mullet, cut your hair into a mullet, style your best mullet, or wear a mullet wig. Of course, we understand that is not an option for everyone, but Wyatt would love for anyone who can to please do so!
T-shirts: Distributed on race day while supplies last. All pre-registered participants are guaranteed a T-shirt.
Wyatts Story
In 2021 on the way home from a family vacation, Wyatt began collapsing. We knew right away something wasn't right. After being brushed off by the pediatrician and ER Neurologist, we pushed for answers. They performed an emergency Brain MRI to see if his collapsing was neurological. Afterwards, they apologized repeatedly when they broke the news. They discovered Wyatt had bilateral brain lesions on his Globus Pallidus. They also found he had undetectable levels of Vitamin B1 in his body, Hypotonia, Ataxia and Peripheral Neuropathy. We left the hospital more confused than we had answers and sought a second opinion. It wasn't until the second hospital took another look at his records that we had a direction to go in. Finally, after a several yearlong medical nightmare, our son Wyatt was diagnosed with a rare life-threatening neurodegenerative metabolic mitochondrial disease, Pyruvate Dehydrogenase Complex Deficiency. This was the most devastating and heartbreaking diagnosis we never even imagined we would hear.
Hope for PDCD
As parents who love their child more than life itself, we refused to accept that there are no treatment options or a cure available. We cannot and will not stop fighting and advocating for Wyatt. On that journey is where we met Francis and Jon, two other parents who refused to give up. In honor of their daughter Violet, who has the same disease as Wyatt, and in an effort to give our kids a fighting chance they have created "Hope for PDCD", a non-profit foundation dedicated to giving children with Pyruvate Dehydrogenase Complex Deficiency (PDCD) hope for a cure. Hope for PDCD has partnered with the University of Texas Southwestern to initiate gene therapy research for the PDHA1 gene, the gene in which pathogenic mutations most commonly cause PDCD. The first stage of testing began on 11/2/2022 and is expected to take 20-24 months to complete. The hope is to progress towards an In-Human Clinal Trial.
This is where the 5k comes in! This is Wyatts best chance at fighting this disease and stopping the neurodegeneration. As I mentioned earlier, there is nothing we won't do to help Wyatt. He has come so far and fought so incredibly hard, we can't let him down. This research is very costly and we can't do it without your help. We are coming to you as friends, neighbors, family, fellow parents, and humans to please help us to help him and every one of his PDCD brothers and sisters. For more information on the foundation we are benefitting please visit www.HopeForPDCD.org or for more information on Wyatt Wilds journey please visit www.facebook.com/FightLikeWyatt or follow @cutterguywyattwild on Instagram.
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