Not Today DMD!
- Date Sat 13th September 2025
- Time 9:00AM CDT
- Location Roberts, Illinois
- Price $22.20
- Races 1 race
- Distances 5km
Event summary
Join us on Saturday, September 13, 2025, in Roberts, Ford, for the inspiring "Not Today DMD!" event, a race dedicated to raising awareness and combating Duchenne Muscular Dystrophy (DMD). This uplifting event not only highlights the challenges faced by those diagnosed with this rare genetic disorder but also celebrates the hope and advancements in treatment that are on the horizon. Participants will have the opportunity to engage in various race distances, making it a perfect occasion for both seasoned athletes and families looking to support a great cause.
The event is rooted in the stories of Mason and Dawson, two brave boys diagnosed with DMD, who exemplify resilience and the spirit of community. As we race together, we aim to shed light on the importance of research and support for those living with DMD. With recent breakthroughs in gene therapy and ongoing treatment options, there is a promising future ahead. Come out and show your support, as every step taken brings us closer to a world where Duchenne Muscular Dystrophy can be defeated!
The event is rooted in the stories of Mason and Dawson, two brave boys diagnosed with DMD, who exemplify resilience and the spirit of community. As we race together, we aim to shed light on the importance of research and support for those living with DMD. With recent breakthroughs in gene therapy and ongoing treatment options, there is a promising future ahead. Come out and show your support, as every step taken brings us closer to a world where Duchenne Muscular Dystrophy can be defeated!
Organiser's Description
JOIN US IN OUR RACE TO RAISE AWARENESS AND HOPEFULLY SOMEDAY BRING AN END TO DUCHENNE!
OUR STORY:
In the summer of 2021, Mason and Dawson were both diagnosed with Duchenne Muscular Dystrophy (DMD) a rare, progressive genetic disorder characterized by severe muscle degeneration. In individuals with DMD, the body lacks a crucial protein called dystrophin, which is essential for muscle repair and function. Without dystrophin, muscles gradually break down at an accelerated rate.
The natural progression of Duchenne typically begins around the age of 7, when gross motor skills decline, and children may require increasing assistance to move around. By the ages of 10 to 12, most individuals with DMD lose the ability to walk and require the use of a wheelchair. Because every muscle in the body is affected including those involved in breathing and heart function the disease ultimately impacts all areas of physical ability. Currently, the average life expectancy for individuals with DMD extends into their 30s, though advancements in care and research continue to offer hope for improved outcomes.
There is hope on the horizon for Duchenne Muscular Dystrophy patients. Recent advancements in gene therapy offer promising potential, and we are optimistic that these innovations will allow Mason and Dawson to maintain their mobility into adulthood. Currently, both boys are following a steroid treatment regimen as part of their care plan.
Mason has participated in a gene therapy clinical trial, which, while not a cure, represents a significant step forward in the fight against Duchenne. In addition to this, he is receiving weekly IV infusions aimed at combating the progression of the disease. Dawson, on the other hand, is taking a temporary break from these infusions with hopes of joining a gene therapy trial later this year.
The future is full of possibilities, and we remain hopeful that Duchenne Muscular Dystrophy will one day be eradicated in our boys lifetime.
OUR STORY:
In the summer of 2021, Mason and Dawson were both diagnosed with Duchenne Muscular Dystrophy (DMD) a rare, progressive genetic disorder characterized by severe muscle degeneration. In individuals with DMD, the body lacks a crucial protein called dystrophin, which is essential for muscle repair and function. Without dystrophin, muscles gradually break down at an accelerated rate.
The natural progression of Duchenne typically begins around the age of 7, when gross motor skills decline, and children may require increasing assistance to move around. By the ages of 10 to 12, most individuals with DMD lose the ability to walk and require the use of a wheelchair. Because every muscle in the body is affected including those involved in breathing and heart function the disease ultimately impacts all areas of physical ability. Currently, the average life expectancy for individuals with DMD extends into their 30s, though advancements in care and research continue to offer hope for improved outcomes.
There is hope on the horizon for Duchenne Muscular Dystrophy patients. Recent advancements in gene therapy offer promising potential, and we are optimistic that these innovations will allow Mason and Dawson to maintain their mobility into adulthood. Currently, both boys are following a steroid treatment regimen as part of their care plan.
Mason has participated in a gene therapy clinical trial, which, while not a cure, represents a significant step forward in the fight against Duchenne. In addition to this, he is receiving weekly IV infusions aimed at combating the progression of the disease. Dawson, on the other hand, is taking a temporary break from these infusions with hopes of joining a gene therapy trial later this year.
The future is full of possibilities, and we remain hopeful that Duchenne Muscular Dystrophy will one day be eradicated in our boys lifetime.
Races
-
5k
Incl. $2.20 Fee & Join Our Fight to End Duchenne Wristband
Sat 13th September 2025 (9:00AM CDT)
$22.20
Run or walk the race but plan to stay for the day! We have a by donation pancake sausage breakfast, inflatables and giant corn pit for the kids, silent auction, raffles, live music, and food trucks!
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