TCSF 4th Annual VIRTUAL Run, Roll, and Stroll
- Date Thu 1st October 2026 - Sun 1st November 2026
- Location Virtual, Missouri
- Price $11.60
- Races 2 races
- Distances 5km, 1 Mile
Event summary
Get ready to lace up your shoes for the 4th Annual Virtual Run, Roll, and Stroll hosted by The Cute Syndrome Foundation! This exciting event takes place from October 1 to November 1, 2026, and invites participants from all over the globe to walk, run, roll, or stroll either a 5K (3.1 miles) or a 1-mile distance. This year's event supports the SCN8A community, raising awareness and funds for vital research and family support.
Join in the fun from the comfort of your favorite trail, neighborhood, or even a treadmill. For just $10, participants receive a printable race bib, a virtual finisher badge, and a donation to TCSF. Don’t forget to dress in purple or your best race gear, invite friends and family to join your journey, and share your spirited photos! With opportunities to win TCSF swag for the fastest participant, biggest fundraiser, and most spirited photo, this virtual race is a wonderful way to connect and make a difference. Together, let’s spread awareness for SCN8A and create a brighter future for those affected!
Join in the fun from the comfort of your favorite trail, neighborhood, or even a treadmill. For just $10, participants receive a printable race bib, a virtual finisher badge, and a donation to TCSF. Don’t forget to dress in purple or your best race gear, invite friends and family to join your journey, and share your spirited photos! With opportunities to win TCSF swag for the fastest participant, biggest fundraiser, and most spirited photo, this virtual race is a wonderful way to connect and make a difference. Together, let’s spread awareness for SCN8A and create a brighter future for those affected!
Organiser's Description
JOIN TCSFS 4TH ANNUAL VIRTUAL RUN, ROLL, & STROLL
Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 131, 2026 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.
REGISTRATION
- $10 USD includes: entry, donation to TCSF, printable race bib [https://acrobat.adobe.com/id/urnsc055eb763-7da2-4b81-b1bc-3ece505b895f], and a virtual finisher badge.
- Shirts & merch available separately in our Bonfire Store! [http://bonfire.com/2026-tcsf-run-roll-stroll-1]
WHY A VIRTUAL RACE?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.
Whats Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo
MAKE IT FUN
- Invite friends and family to join you
- Dress in purple or race gear and share photos
- Create a team and raise funds for TCSF!
FUNDRAISING
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!
ABOUT SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.
WHY SUPPORT TCSF?
Since 2013, TCSF has:
- Connected with 600 families in 53 countries
- Funded $500,000+ in SCN8A research
- Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
- Awarded $71,000+ in travel grants for families attending the Annual Gathering
- Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
- Reached 90,000+ people with this years SCN8A Awareness Day campaign
- Supported caregivers through private groups, grief recovery, and life coaching
- Built community through local Cute Connections meetups
- Honored the memory of SCN8A angels
Your participation makes a difference. We are stronger together!
Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 131, 2026 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.
REGISTRATION
- $10 USD includes: entry, donation to TCSF, printable race bib [https://acrobat.adobe.com/id/urnsc055eb763-7da2-4b81-b1bc-3ece505b895f], and a virtual finisher badge.
- Shirts & merch available separately in our Bonfire Store! [http://bonfire.com/2026-tcsf-run-roll-stroll-1]
WHY A VIRTUAL RACE?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.
Whats Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo
MAKE IT FUN
- Invite friends and family to join you
- Dress in purple or race gear and share photos
- Create a team and raise funds for TCSF!
FUNDRAISING
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!
ABOUT SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.
WHY SUPPORT TCSF?
Since 2013, TCSF has:
- Connected with 600 families in 53 countries
- Funded $500,000+ in SCN8A research
- Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
- Awarded $71,000+ in travel grants for families attending the Annual Gathering
- Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
- Reached 90,000+ people with this years SCN8A Awareness Day campaign
- Supported caregivers through private groups, grief recovery, and life coaching
- Built community through local Cute Connections meetups
- Honored the memory of SCN8A angels
Your participation makes a difference. We are stronger together!
Races
-
5k/3.1mi: Run, Roll & Stroll
Incl. $1.60 Fee
$11.60
CLOSEDThis race is a virtual format. A virtual race allows you to choose a date and time between October 1st and October 31st that is convenient to you, and participate inside on a treadmill or outside, alone or with friends! Racers are invited to walk, run, or use a wheelchair or stroller. International participants are welcome! You can submit your time at runsignup.com. Your $10 registration is a direct donation to The Cute Syndrome Foundation, and includes a printable race bib and opportunity to compete for TCSF swag in the fastest competitor, biggest fundraiser, and most spirited photo categories. Performance t-shirts are available for an additional cost. Participants can self report their 5K and 1 mile time on the RunSignUp website. -
1.6k/1 Mi: Run, Roll & Stroll
Incl. $1.60 Fee
$11.60
CLOSEDThis is a virtual format. A virtual race allows you to choose a date and time between October 1st and October 31st that is convenient to you, and participate inside on a treadmill or outside, alone or with friends! Racers are invited to walk, run, or use a wheelchair or stroller. International participants are welcome! You can submit your time at runsignup.com. Your $10 registration is a direct donation to The Cute Syndrome Foundation, and includes a printable race bib and opportunity to compete for TCSF swag in the fastest competitor, biggest fundraiser, and most spirited photo categories. Performance t-shirts are available for an additional cost. Participants can self report their 5K and 1 mile time on the RunSignUp website.
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Virtual - Race in your own community!, Virtual, 00000, MO, United States
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TCSF 4th Annual VIRTUAL Run, Roll, and Stroll
