Miles that Matter For KIF1A
- Date Sun 1st February 2026 - Sat 28th February 2026
- Location Virtual Event
- Price $28.00
- Races 1 race
- Distances Ultra
Event summary
Join us for the uplifting event, "Miles that Matter for KIF1A," taking place throughout the month of February 2026 in vibrant New York! From February 1st to February 28th, participants are challenged to complete 28 miles or more in this inspiring virtual event, coinciding with Rare Disease Day. This initiative aims to raise awareness and support for KIF1A Associated Neurological Disorder (KAND), a condition that significantly affects the mobility of many children.
Whether you choose to walk, run, or ride, every step you take is a step toward making a difference. You can complete your miles at your own pace and on your own schedule, making it a flexible and rewarding experience for everyone involved. By participating, you not only honor the KAND warriors but also contribute to vital research efforts aimed at finding effective treatments and a cure. Don't miss out on the chance to be part of this meaningful challenge—let's move together and inspire change in the fight against KAND! Plus, if you complete 28 miles or more and submit your results, you'll be entered for a chance to win exciting prizes. Join us in making every mile matter!
Whether you choose to walk, run, or ride, every step you take is a step toward making a difference. You can complete your miles at your own pace and on your own schedule, making it a flexible and rewarding experience for everyone involved. By participating, you not only honor the KAND warriors but also contribute to vital research efforts aimed at finding effective treatments and a cure. Don't miss out on the chance to be part of this meaningful challenge—let's move together and inspire change in the fight against KAND! Plus, if you complete 28 miles or more and submit your results, you'll be entered for a chance to win exciting prizes. Join us in making every mile matter!
Organiser's Description
MILES THAT MATTER IS BACK!
Will you join us? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2026, RARE DISEASE DAY!
This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
YOU CAN COVER THESE MILES HOWEVER YOU CHOOSE THROUGHOUT THE MONTH OF FEBRUARY. WHETHER IT'S WALKING, RUNNING, OR RIDING, ITS ALL ABOUT MOVING FORWARD WHEN AND HOW YOU FEEL MOST COMFORTABLE. EVERY STEP COUNTS, AND WE HOPE WE CAN INSPIRE EVERYONE TO PARTICIPATE!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
Will you join us? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2026, RARE DISEASE DAY!
This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
YOU CAN COVER THESE MILES HOWEVER YOU CHOOSE THROUGHOUT THE MONTH OF FEBRUARY. WHETHER IT'S WALKING, RUNNING, OR RIDING, ITS ALL ABOUT MOVING FORWARD WHEN AND HOW YOU FEEL MOST COMFORTABLE. EVERY STEP COUNTS, AND WE HOPE WE CAN INSPIRE EVERYONE TO PARTICIPATE!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
Races
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Miles That Matter: 28 Mile Challenge for a KIF1A Cure
Incl. $2.53 Fee
$28.00
OPENS 01 DECSave 10% by committing to our February Challenge before 1/10 using coupon code NewYear. Will you join us for Miles that Matter for KIF1A? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! Can't join the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information or create a fundraiser to help us reach our goal!
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Miles that Matter For KIF1A
