Miles that Matter For KIF1A
- Date Sun 1st February 2026 - Sat 28th February 2026
- Location Virtual Event
- Price $24.32
- Races 1 race
- Distances Ultra
Event summary
Get ready to lace up your shoes for a cause that truly matters! The "Miles that Matter For KIF1A" event will take place from February 1 to February 28, 2026, in vibrant New York City. This inspiring virtual challenge invites participants to complete 28 miles or more throughout the month, culminating on Rare Disease Day. Whether you prefer walking, running, or cycling, you can take part from anywhere that suits you best.
This event is dedicated to raising awareness and support for KIF1A Associated Neurological Disorder (KAND), a condition that can significantly impact the mobility of affected children. Every step taken in this challenge not only honors these brave warriors but also contributes to vital research aimed at finding effective treatments and a cure. Join us in this uplifting journey as we aim to inspire each other and make a difference. Plus, by completing 28 miles or more and submitting your results, you’ll have the chance to win exciting prizes! If you’re unable to participate physically, your donations are always welcome to support this important mission. Together, let's move forward and make every mile count!
This event is dedicated to raising awareness and support for KIF1A Associated Neurological Disorder (KAND), a condition that can significantly impact the mobility of affected children. Every step taken in this challenge not only honors these brave warriors but also contributes to vital research aimed at finding effective treatments and a cure. Join us in this uplifting journey as we aim to inspire each other and make a difference. Plus, by completing 28 miles or more and submitting your results, you’ll have the chance to win exciting prizes! If you’re unable to participate physically, your donations are always welcome to support this important mission. Together, let's move forward and make every mile count!
Organiser's Description
MILES THAT MATTER IS BACK!
Will you join us? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2026, RARE DISEASE DAY!
This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
YOU CAN COVER THESE MILES HOWEVER YOU CHOOSE THROUGHOUT THE MONTH OF FEBRUARY. WHETHER IT'S WALKING, RUNNING, OR RIDING, ITS ALL ABOUT MOVING FORWARD WHEN AND HOW YOU FEEL MOST COMFORTABLE. EVERY STEP COUNTS, AND WE HOPE WE CAN INSPIRE EVERYONE TO PARTICIPATE!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN A PRIZE.
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
Will you join us? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2026, RARE DISEASE DAY!
This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
YOU CAN COVER THESE MILES HOWEVER YOU CHOOSE THROUGHOUT THE MONTH OF FEBRUARY. WHETHER IT'S WALKING, RUNNING, OR RIDING, ITS ALL ABOUT MOVING FORWARD WHEN AND HOW YOU FEEL MOST COMFORTABLE. EVERY STEP COUNTS, AND WE HOPE WE CAN INSPIRE EVERYONE TO PARTICIPATE!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN A PRIZE.
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
Races
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Miles That Matter: 28 Mile Challenge for a KIF1A Cure
Incl. $2.32 Fee
$24.32
OPENS 01 DECSave more by committing to our February Challenge by 12/31! Will you join us for Miles that Matter for KIF1A? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! Can't join the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information or create a fundraiser to help us reach our goal!
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