Miles that Matter For KIF1A
- Date Sat 1st February 2025 - Fri 28th February 2025
- Time 12:01AM EST
- Location Virtual Event
- Price $28.00
- Races 1 race
- Distances Ultra
Event summary
Join us for the inspiring "Miles That Matter for KIF1A" event taking place throughout February 2025 in the vibrant city of New York! This virtual challenge invites participants to complete a total of 28 miles or more by February 28, coinciding with Rare Disease Day. Whether you prefer walking, running, or cycling, this is your chance to take meaningful steps for a great cause.
KIF1A Associated Neurological Disorder (KAND) impacts the mobility of many children, and this event aims to raise awareness and support for crucial research towards effective treatments and a potential cure. Each mile you complete not only honors the brave KAND warriors but also helps inspire others to join in the movement. Plus, participants who reach the 28-mile goal will be entered for a chance to win one of three $100 Amazon eGift cards! Don’t miss out on this opportunity to make a difference while staying active and connected. Let’s move forward together and turn every step into a powerful statement of hope and determination!
KIF1A Associated Neurological Disorder (KAND) impacts the mobility of many children, and this event aims to raise awareness and support for crucial research towards effective treatments and a potential cure. Each mile you complete not only honors the brave KAND warriors but also helps inspire others to join in the movement. Plus, participants who reach the 28-mile goal will be entered for a chance to win one of three $100 Amazon eGift cards! Don’t miss out on this opportunity to make a difference while staying active and connected. Let’s move forward together and turn every step into a powerful statement of hope and determination!
Organiser's Description
Will you join us for _Miles that Matter for KIF1A_? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every step counts, and we hope we can inspire everyone to participate!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN ONE OF THREE $100 AMAZON EGIFT CARDS!
Can't join for the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every step counts, and we hope we can inspire everyone to participate!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN ONE OF THREE $100 AMAZON EGIFT CARDS!
Can't join for the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information.
Races
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Miles That Matter: 28 Mile Challenge for a KIF1A Cure
Incl. $2.53 Fee
$28.00
OPENS SOON*Registrations opens 12/31/2024 at noon! Save 10% by committing to our February Challenge between 12/31-1/10 using coupon code NewYear. Will you join us for Miles that Matter for KIF1A? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! KIF1A Associated Neurological Disorder (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this WE DONT TAKE A SINGLE STEP FOR GRANTED. As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure. You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every mile counts, and we hope we can inspire everyone to participate! Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge! If you complete 28 Miles or more and submit your results, you will be automatically entered for a chance to win one of three $100 Amazon eGift Cards! Can't join the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information or create a fundraiser to help us reach our goal!
Miles that Matter For KIF1A