Miles that Matter For KIF1A
- Date Sat 1st February 2025 - Fri 28th February 2025
- Time 12:01AM EST
- Location Any City, New York
- Price $28.00
- Races 1 race
- Distances Ultra
Event summary
Join us for the inspiring "Miles that Matter for KIF1A" virtual challenge, taking place throughout the month of February 2025! From February 1 to February 28, participants from all over New York and beyond are invited to complete 28 miles or more in honor of Rare Disease Day. This uplifting event is dedicated to raising awareness and support for KIF1A Associated Neurological Disorder (KAND), a condition that affects the mobility of many children.
Whether you choose to walk, run, or ride, every step you take contributes to a greater mission—supporting KIF1A research aimed at finding effective treatments and a cure. Plus, when you complete the challenge and submit your results, you'll be entered for a chance to win one of three $100 Amazon eGift cards! And if you’re unable to participate, your donations are greatly appreciated. Let’s come together to honor our KAND warriors and make a difference in their lives. Sign up, get moving, and remember: every mile matters!
Whether you choose to walk, run, or ride, every step you take contributes to a greater mission—supporting KIF1A research aimed at finding effective treatments and a cure. Plus, when you complete the challenge and submit your results, you'll be entered for a chance to win one of three $100 Amazon eGift cards! And if you’re unable to participate, your donations are greatly appreciated. Let’s come together to honor our KAND warriors and make a difference in their lives. Sign up, get moving, and remember: every mile matters!
Organiser's Description
Will you join us for _Miles that Matter for KIF1A_? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! This is a virtual challenge that can be completed from wherever you choose.
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every step counts, and we hope we can inspire everyone to participate!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN ONE OF THREE $100 AMAZON EGIFT CARDS!
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
_WE CARRY KEVAN_ HAS KINDLY OFFERED TO HELP SUPPORT OUR GOAL BY PROVIDING EVERYONE WHO REGISTERS WITH A 20% OFF DISCOUNT FOR A _WE CARRY KEVAN_ BACKPACK! YOU SHOULD RECEIVE YOUR _WE CARRY KEVAN_ DISCOUNT CODE VIA EMAIL WITHIN 48 HOURS FROM REGISTERING. THANK YOU!
KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this
WE DONT TAKE A SINGLE STEP FOR GRANTED
As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure.
You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every step counts, and we hope we can inspire everyone to participate!
Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge!
IF YOU COMPLETE 28 MILES OR MORE AND SUBMIT YOUR RESULTS, YOU WILL BE AUTOMATICALLY ENTERED FOR A CHANCE TO WIN ONE OF THREE $100 AMAZON EGIFT CARDS!
CAN'T JOIN FOR THE CHALLENGE, BUT STILL WANT TO HELP? YOUR DONATIONS AND SUPPORT FOR OUR MISSION IS GREATLY APPRECIATED. CLICK DONATE ABOVE FOR MORE INFORMATION.
_WE CARRY KEVAN_ HAS KINDLY OFFERED TO HELP SUPPORT OUR GOAL BY PROVIDING EVERYONE WHO REGISTERS WITH A 20% OFF DISCOUNT FOR A _WE CARRY KEVAN_ BACKPACK! YOU SHOULD RECEIVE YOUR _WE CARRY KEVAN_ DISCOUNT CODE VIA EMAIL WITHIN 48 HOURS FROM REGISTERING. THANK YOU!
Races
-
Miles That Matter: 28 Mile Challenge for a KIF1A Cure
Incl. $2.53 Fee
$28.00
CLOSED*Registrations opens 12/31/2024 at noon! Save 10% by committing to our February Challenge between 12/31-1/10 using coupon code NewYear. Will you join us for Miles that Matter for KIF1A? We are challenging each other to complete 28 miles or MORE in the month of February by February 28, 2025, Rare Disease Day! KIF1A Associated Neurological Disorder (KAND) can prevent some of our children from ever being able to move, and those who do have some mobility face the possibility of losing this over time. Its just one of many of the devastating symptoms those with KAND face and because of this WE DONT TAKE A SINGLE STEP FOR GRANTED. As parents and caregivers, its also crucial for us to stay strong, and were on a mission to honor our KAND warriors this Rare Disease Month by raising awareness and support for KIF1A research aimed at finding effective treatments and a cure. You can cover these miles however you choose throughout the month of February. Whether it's walking, running, or riding, its all about moving forward when and how you feel most comfortable. Every mile counts, and we hope we can inspire everyone to participate! Together, we can go further and make a difference in the fight against KAND. Each step brings us closer to a cure, and we hope you'll join us in this important 28-mile challenge! If you complete 28 Miles or more AND submit your results, you will be automatically entered for a chance to win one of three $100 Amazon eGift Cards! Can't join the challenge, but still want to help? Your donations and support for our mission is greatly appreciated. Click DONATE above for more information or create a fundraiser to help us reach our goal!
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