NORD (National Organization for Rare Disorders) at UVA 5k
- Date Sun 13th April 2025
- Time 9:00AM EDT
- Location Charlottesville, Virginia
- Price $20.08
- Races 2 races
- Distances 5km
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Event summary
Join us for the inaugural NORD (National Organization for Rare Disorders) at UVA 5k on Sunday, April 13th, 2025, in the vibrant city of Charlottesville! This exciting fundraising event marks a significant step for our student chapter, dedicated to raising awareness and support for individuals affected by rare diseases. With a scenic 5k course, participants of all ages are invited to run, walk, or jog while contributing to a noble cause.
All proceeds from this event will directly benefit NORD's mission to advocate for and support the over 25 million Americans living with rare diseases. By participating in this 5k, youβll help fund essential research and programs aimed at improving the lives of those impacted by these conditions. Come out, show your support, and be a part of the community making a difference on this meaningful day in Charlottesville!
All proceeds from this event will directly benefit NORD's mission to advocate for and support the over 25 million Americans living with rare diseases. By participating in this 5k, youβll help fund essential research and programs aimed at improving the lives of those impacted by these conditions. Come out, show your support, and be a part of the community making a difference on this meaningful day in Charlottesville!
Organiser's Description
NORD at UVA is a student chapter of the National Organization for Rare Disorders, and this is our first fundraising 5k! Founded two years ago, our chapter is focused on education and advocacy within the rare disease space. All proceeds from this event will go toward NORD's support of rare disease patients!
NORD (National Organization for Rare Disorders), a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. Over 25 million Americans have been diagnosed with rare diseases, and less than 10% of these diseases have a treatment approved by the FDA. Our goal is to raise money to help fund research for rare diseases. Website: https://rarediseases.org/
NORD (National Organization for Rare Disorders), a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. Over 25 million Americans have been diagnosed with rare diseases, and less than 10% of these diseases have a treatment approved by the FDA. Our goal is to raise money to help fund research for rare diseases. Website: https://rarediseases.org/
Races
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In-Person 5K Run/Walk
Incl. $2.08 Fee & Race Bib and NORD Bracelet
Sun 13th April 2025 (9:00AM EDT)
$20.08
Support NORD at UVA's mission by running or walking in person through UVA's grounds! -
Virtual 5K/Walk
Incl. $2.08 Fee
$20.08
Support NORD at UVA's mission by running or walking from the comfort of your own home/virtually. We welcome supporters from all areas!
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