Not Today DMD!

Saturday, September 7, 2024 Past event

9:00 AM CDT

Roberts, Illinois

$22.20 · 1 race

5km

Event summary

Join us for the inspiring "Not Today DMD!" event on Saturday, September 7, 2024, in the charming town of Roberts, Ford. This uplifting gathering is dedicated to raising awareness and funds to combat Duchenne Muscular Dystrophy, a rare muscle-wasting disease that affects young boys like Mason and Dawson, who were diagnosed in 2021. As we rally together, we aim to support research and therapies that could lead to a brighter future for these courageous kids and others like them.

Participants can look forward to an exciting day filled with activities designed to engage the community and spread hope. While specific race distances are yet to be announced, the event promises to be a celebration of strength, resilience, and unity. Together, we can help pave the way for groundbreaking advancements in gene therapy and other treatments, ensuring that the future is filled with possibilities for Mason, Dawson, and countless others. Let’s take a stand and say “Not Today DMD!”

This event has taken place

Congratulations to everyone who took part. We're waiting on information about the next edition of this event.

Did you race? Let the community know how you got on and leave a review.

Previous editions

Sep 13, 2025

Reviews

Done this event?

First-hand event reviews from people who have been there, done that and got the breathable T-shirt, really help everyone choose their next event.

Races

5k

Incl. $2.20 Fee & Join our fight to end Duchenne Wristband

Run or walk the race but plan to stay for the day! We have a by donation pancake sausage breakfast, inflatables and giant corn pit for the kids, silent auction, raffles, live music, and food trucks!

9:00 AM CDT

$22.20

Entries closed

Organiser's description

JOIN US IN OUR RACE TO RAISE AWARENESS AND HOPEFULLY SOMEDAY BRING AN END TO DUCHENNE!

OUR STORY:
Mason (6) and Dawson (3) were diagnosed with Duchenne Muscular Dystrophy in the summer of 2021. This rare disease is a muscle wasting disease where the boys are breaking down muscle at a high rate, and their bodies are missing the dystrophin protein to repair them. The natural history of this disease is around the age of 7 the boys would start regressing with their gross motor skills and need a scooter to help them get around. The age of 10-12 they would be unable to walk and need a wheelchair. With every part of the body being a muscle it means that all functions slowly regress and life expectancy is into their 30s.

But, there is hope on the horizon! Gene therapy has come out for Duchenne patients and we are hopeful to keep the boys walking well into their adult life! Both boys are on a steroid regimen for now. Mason has been dosed with the clinical trial of Gene Therapy (this is not yet a cure but hopefully a huge stepping stone to get us to a cure). This summer we will be stacking therapies on Mason and getting him a weekly infusion as well. Dawson is currently getting weekly infusions of a therapy that will help a little with getting his body some of the protein it is missing, Dawson will also be dosed with Gene Therapy when he turns 4.

THE FUTURE IS BRIGHT AND WE HOPE TO SEE THE END TO DUCHENNE IN OUR BOYS LIFETIME!