TCSF 3rd Annual VIRTUAL Run, Roll, and Stroll
- Date Fri 3rd October 2025 - Tue 14th October 2025
- Location Virtual Event
- Price $11.60
- Races 2 races
- Distances 5km, 1 Mile
Last chance to enter
Race day is fast approaching
Event summary
Get ready to join a global community in the 3rd Annual VIRTUAL Run, Roll, and Stroll, taking place from October 3 to October 14, 2025! This exciting event invites participants from all over the world to walk, run, roll, or stroll either a 5K (3.1 miles) or a 1-mile course in honor of the SCN8A community. Whether you choose to tackle your distance on your local trail, in your neighborhood, or even on a treadmill, your participation will help raise funds for The Cute Syndrome Foundation (TCSF), dedicated to SCN8A awareness and research.
Registration is just $10 USD, which includes your entry, a donation to TCSF, a printable race bib, and a virtual finisher badge. Plus, you can grab fun shirts and merchandise separately from the Bonfire Store! This virtual format allows families, friends, and supporters to come together from anywhere, creating a sense of unity and purpose. Don’t forget to invite your friends and family to join you, dress in purple to show your spirit, and share your journey on social media! Together, let's make a difference and celebrate the strength of the SCN8A community!
Registration is just $10 USD, which includes your entry, a donation to TCSF, a printable race bib, and a virtual finisher badge. Plus, you can grab fun shirts and merchandise separately from the Bonfire Store! This virtual format allows families, friends, and supporters to come together from anywhere, creating a sense of unity and purpose. Don’t forget to invite your friends and family to join you, dress in purple to show your spirit, and share your journey on social media! Together, let's make a difference and celebrate the strength of the SCN8A community!
Organiser's Description
JOIN TCSFS 3RD ANNUAL VIRTUAL RUN, ROLL, & STROLL
Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 314, 2025 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.
REGISTRATION
- $10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge.
- Shirts & merch available separately in our Bonfire Store! [https://www.bonfire.com/2025-tcsf-run-roll-stroll-virtual-race/]
WHY A VIRTUAL RACE?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.
Whats Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo
MAKE IT FUN
- Invite friends and family to join you
- Dress in purple or race gear and share photos
- Create a team and raise funds for TCSF!
FUNDRAISING
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!
ABOUT SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.
WHY SUPPORT TCSF?
Since 2013, TCSF has:
- Connected with 600 families in 53 countries
- Funded $500,000+ in SCN8A research
- Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
- Awarded $71,000+ in travel grants for families attending the Annual Gathering
- Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
- Reached 90,000+ people with this years SCN8A Awareness Day campaign
- Supported caregivers through private groups, grief recovery, and life coaching
- Built community through local Cute Connections meetups
- Honored the memory of SCN8A angels
Your participation makes a difference. We are stronger together!
Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 314, 2025 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.
REGISTRATION
- $10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge.
- Shirts & merch available separately in our Bonfire Store! [https://www.bonfire.com/2025-tcsf-run-roll-stroll-virtual-race/]
WHY A VIRTUAL RACE?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.
Whats Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo
MAKE IT FUN
- Invite friends and family to join you
- Dress in purple or race gear and share photos
- Create a team and raise funds for TCSF!
FUNDRAISING
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!
ABOUT SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.
WHY SUPPORT TCSF?
Since 2013, TCSF has:
- Connected with 600 families in 53 countries
- Funded $500,000+ in SCN8A research
- Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
- Awarded $71,000+ in travel grants for families attending the Annual Gathering
- Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
- Reached 90,000+ people with this years SCN8A Awareness Day campaign
- Supported caregivers through private groups, grief recovery, and life coaching
- Built community through local Cute Connections meetups
- Honored the memory of SCN8A angels
Your participation makes a difference. We are stronger together!
Races
-
Run, Roll, and Stroll - 5k (3.1 Miles)
Incl. $1.60 Fee
$11.60
This race is a virtual format. A virtual race allows you to choose a date and time between October 3rd and October 14th that is convenient to you, and participate inside on a treadmill or outside, alone or with friends! Racers are invited to walk, run, or use a wheelchair or stroller. International participants are welcome! You can submit your time at runsignup.com. Your $10 registration is a direct donation to The Cute Syndrome Foundation, and includes a printable race bib and opportunity to compete for TCSF swag in the fastest competitor, biggest fundraiser, and most spirited photo categories. Performance t-shirts are available for an additional cost. Participants can self report their 5K and 1 mile time on the RunSignUp website. -
Run, Roll, and Stroll - 1 Mile (1.6 Km)
Incl. $1.60 Fee
$11.60
This is a virtual format. A virtual race allows you to choose a date and time between October 3rd and October 14th that is convenient to you, and participate inside on a treadmill or outside, alone or with friends! Racers are invited to walk, run, or use a wheelchair or stroller. International participants are welcome! You can submit your time at runsignup.com. Your $10 registration is a direct donation to The Cute Syndrome Foundation, and includes a printable race bib and opportunity to compete for TCSF swag in the fastest competitor, biggest fundraiser, and most spirited photo categories. Performance t-shirts are available for an additional cost. Participants can self report their 5K and 1 mile time on the RunSignUp website.
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