Rare Disease Day 2025 virtual race

We are back this year with a new Rare Disease Day virtual race medal. This year's medal is lungs with zebra stripes. Four of the stripes are the colors of Rare Disease Day.

The profits from this event will be split between The PCD Foundation and Running On Air.

You can choose how far you want to walk or run to complete this event. Since this is for rare diseases and some people with rare diseases have trouble crossing a room, the distance you want to do is up to you. Participants can do 5 meters for those with disabilities or other difficulties that prevent them from going a longer distance. 5K for those who can do more than 5 meters. And 5 miles for those of you who are athletic or just ambitious. If you are healthy enough you can even do 10K or a half marathon.

Rare Disease Day is the last day of February each year. This year it is the 28th. You can complete your distance any time in February.

This event is organized by Running On Air, a 501(c)(3) charitable organization whose mission is to help others breathe more easily. Our focus is on advocacy and education around supplemental oxygen, lung diseases, especially Primary Ciliary Dyskinesia (PCD) and Bronchiectasis, and rare diseases.