Run for Nash
- Date Sat 26th October 2024
- Time 9:00AM EST
- Location Tuscola, Illinois
- Price $15.00 - $31.00
- Races 3 races
- Distances 5km
Event summary
Join us for the inspiring "Run for Nash" on Saturday, October 26, 2024, in Tuscola, Douglas! This uplifting event promises an exhilarating day filled with community spirit and purpose as we come together to support a local family facing the challenges of Vanishing White Matter Disease (VWM). Runners of all ages can participate in various race distances, making this an inclusive event for everyone.
Whether youโre a seasoned runner or just starting out, youโll have the chance to compete for exciting awards, including male and female categories for overall winners and age group awards for 1st, 2nd, and 3rd place! Every finisher will receive a commemorative medal to celebrate their achievement. This race is not just about running; it's about raising awareness and funds for Nash, a courageous young boy diagnosed with VWM, and supporting his family in their time of need. Join us in making a difference and helping to fund vital research that may lead to a cure. Let's honor Nash and show our community's strength on this special day!
Whether youโre a seasoned runner or just starting out, youโll have the chance to compete for exciting awards, including male and female categories for overall winners and age group awards for 1st, 2nd, and 3rd place! Every finisher will receive a commemorative medal to celebrate their achievement. This race is not just about running; it's about raising awareness and funds for Nash, a courageous young boy diagnosed with VWM, and supporting his family in their time of need. Join us in making a difference and helping to fund vital research that may lead to a cure. Let's honor Nash and show our community's strength on this special day!
Organiser's Description
* Male/Female awards given to 1st place overall and age group awards for 1st, 2nd, and 3rd place in male/female groups.
* Finisher medal given to all finishers
* Age groups: 17 and under
* 18-29
* 30-39
* 40-49
* 50-59
* 60 and over
This race is to help raise funds for a family who has a son diagnosed with a very rare disease ( please read their story below). The Foreman's have 5 children and are a wonderful part of our small community. This money will go directly to them and to fund research for Vanishing White Matter Disease.
As an avid runner and racer myself, I personally try to run as many races as I can that support an excellent cause. If you are the same this race is for you.
In October 2022 Nash was diagnosed, at the age of 8, with a very rare genetic brain disease called Vanishing White Matter disease. Nash is one of 300 people in the world with VWM and the odds of having this disease are one in 40 million.
Vanishing White Matter Disease (VWM) affects the white matter, or myelin, of the brain known collectively as Leukodystrophies. VWM is an extremely rare neurological condition that destroys myelin, the brains white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. As the disease progresses, Nash can expect some or all of the following symptoms: loss of motor skills (walking usually goes first, followed by ability to sit unassisted, speech, use of hands, head control and ability to swallow), loss of vision, epileptic seizures, vomiting, irritability, and comas leading to death at an early age.
Vanishing White Matter is a terminal disease with no cure but there is hope with the first human clinical trials taking place right now.
We believe Nash will see a cure
Our hope for this run is to show Nash our love and support, raise awareness of VWM, take care of our family and any financial need, and to find a cure by funding research.
The Foreman's
* Finisher medal given to all finishers
* Age groups: 17 and under
* 18-29
* 30-39
* 40-49
* 50-59
* 60 and over
This race is to help raise funds for a family who has a son diagnosed with a very rare disease ( please read their story below). The Foreman's have 5 children and are a wonderful part of our small community. This money will go directly to them and to fund research for Vanishing White Matter Disease.
As an avid runner and racer myself, I personally try to run as many races as I can that support an excellent cause. If you are the same this race is for you.
In October 2022 Nash was diagnosed, at the age of 8, with a very rare genetic brain disease called Vanishing White Matter disease. Nash is one of 300 people in the world with VWM and the odds of having this disease are one in 40 million.
Vanishing White Matter Disease (VWM) affects the white matter, or myelin, of the brain known collectively as Leukodystrophies. VWM is an extremely rare neurological condition that destroys myelin, the brains white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. As the disease progresses, Nash can expect some or all of the following symptoms: loss of motor skills (walking usually goes first, followed by ability to sit unassisted, speech, use of hands, head control and ability to swallow), loss of vision, epileptic seizures, vomiting, irritability, and comas leading to death at an early age.
Vanishing White Matter is a terminal disease with no cure but there is hope with the first human clinical trials taking place right now.
We believe Nash will see a cure
Our hope for this run is to show Nash our love and support, raise awareness of VWM, take care of our family and any financial need, and to find a cure by funding research.
The Foreman's
Races
-
5k Run/Walk
Incl. T-Shirt
Sat 26th October 2024 (9:00AM EDT)
$25.00
CLOSEDSame day registration is also an option but not guaranteed a shirt. -
1/2 Mile Kids Dash for Nash
Incl. T-Shirt
Sat 26th October 2024 (8:30AM EDT)
$15.00
CLOSEDSame day registration is also available There is a $5 fee to order youth shirts -
Virtual 5K
Incl. T-Shirt
$31.00
CLOSEDThis can be done anytime you want of course! There will be an additional shipping charge for shirt and medal or you can opt out of these things.
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